The blood draw went well; it actually took less time than pricking his foot and squeezing drops of blood out to fill in all of the circles on the newborn screen card.
The nurse from Riley called, and it sounds like I was right about the possibility of Josiah being a carrier and not necessarily having Duarte galactosemia. She said this test will tell how much of the enzyme his body is producing. If it is over a ten (not sure if that is a percent or based on some other set scale), he will be able to nurse.
She also said that we should know by the end of the week or possibly Monday. With Elisha we had to wait 2 weeks because they only did the test about once a week; but now they run the test almost daily, so we will get results much sooner. Hooray!
One way or the other, at least we will know soon...not that I struggle with patience or anything.
7 comments:
Great detective work!
Thanks, Julie. I told Robin that it's nice to know some of my synapses are still working and that they weren't all disabled by pregnancy. ;)
Another friend of mine went through something similar with her youngest. He's a carrier and not infected. But the military hospital certainly did a great job of making her anxious!
It looks like the medical community is "on" to galactosemia and that its become a routine newborn screen in many states (I did a little web surfing myself). Thank goodness these things take less time then they used to. It's good info to have, but sometimes feels like DBI.
Any news?
we're praying for over 10!
No news yet. So far, I have resisted the urge to call and ask. I figure they will call when the results are in.
Wish I had thought to ask if it would be our pediatrician calling or the state/Riley nurse. More patience...
Post a Comment